Kidney Research Network
KRN Patient Registry
The KRN patient registry started in 2015 with a focus on one of the major causes of kidney disease in adults and children—glomerular disease. In partnership with their clinical teams, participants from seven diverse nephrology programs around the U.S. consented to share their electronic health record (EHR) data. In 2023, with appropriate regulatory approvals, the registry was expanded to include EHR data representing the entire nephrology population at participating practices, as well as case-matched controls.
EHR data presents unique opportunities by allowing investigators to execute epidemiological research and statistical analyses on previously collected data. The goal of the registry is to better understand the clinical course and progression of kidney disease and advance quality improvement activities, which EHR data collection enables.
Data domains available include: laboratories, medications, diagnoses, procedures, pathology results, vitals, demographics, and transplant data.
​​
Read more about how the data is used here and in our past publications.
​
The KRN welcomes and reviews ancillary studies on a rolling basis. Learn more about the KRN ancillary study application.​​​​